Wednesday, November 12, 2014
Making Progress'
I am almost 6 months post-op. 6 MONTHS!!!!!!! I can't even believe it! Just wanted to make a post letting you know where I am at personally in recovery, and how I'm doing! (Just a reminder that not everyone will make the same progress and be at the same point in recovery at the same time. Everyone heals differently. Take your time and don't base your recovery off of other people's. You'll get there, I promise.
SPLINT SCHEDULE:
As of November 1st, I have to wear my splint 2 times a day, 2 hours each.
On December 1st, I get to move down to wearing my splint 1 time a day, for 2 hours.
On January 1st, I will wear my splint at bedtime, and whenever I feel I need to throughout the day. (driving, dancing, going to fairs or amusement parks, etc.)
EATING:
I am on a soft chew 1 time a day diet. Usually in the morning I will eat eggs. (I like them over medium so it makes them easier not to chew. Ive been eating that since I first got the surgery.)
For lunch, I am at school 5 days a week, and there is a microwave that is available to me by special request in the office because of surgery. Everyday i use the microwave and eat mac and cheese singles or ramen occasionally. I am going to try and find something a little bit healthier.
Dinner is usually when I use my soft chew. the rule is: "Anything softer than a meatball". So I chew things like pasta, soft bread, actual meatballs (lol), fish, SOME chicken if it is very tender, and anything of the sort.
PAIN&MEDS:
Because my severe TMJ was caused by whiplash, I still have a lot of neck and upper back pain. I heat my neck when it gets bad, and take ibuprofen when needed.
My jaw gets a little sore when I am out of my splint for an extended period, when I soft chew, when I sing and when I talk a lot (which is common). If it gets really bad I will take a klonopin before bedtime.
SO that's pretty much it. I'm living life like normal, hanging out, going on adventures, succeeding in school, and making future career plans of being a flight attendant, wooh :) Here's just some pictures of my dance partner and I at a performance, because I hate posting without a picture!
Xx
Surgery hair
So I never REALLY noticed my baby hairs until about 3/4 months post-op, but when I did, it was because I threw my hair up in a bun and saw these awkward little hairs behind my ear just chillin. I have always noticed my new "sideburns" of course, because they are in front of my ear and always showing, but not the back! After I noticed them, I swear they started growing ten times faster!!! Now depending on how they dry if I don't pin them back, they'll curl around my ear or go straight down if my hair is up or any other non-attractive little thing they can do, they do. I'm starting to embrace them, even though they just keep growing, like hair is known to do, and keep getting more and more noticeable. But I figured, I can't do anything about it, so why worry? so now, hair up or hair down, i just let those little sucker free to do whatever they want.. flow in the wind, curl around my ear in a nice big hug, go straight down, or do the right thing and go in the direction of the rest of my hair... (rare). they're learning quickly, though. Anyways... Enjoy a few of the pictures I've taken of my little baby surgery hairs in the last month or two!!
Saturday, September 13, 2014
Hello!
Tuesday, September 2, 2014
3 month visit
Thursday, August 21, 2014
Surgery Survival 101
When I arrived at the hospital for surgery, everything went very fast. We got checked in, were moved upstairs, my mom french braided my hair (you have to keep it out of your face), and then I was pulled back to get my IV and medications and get all cozy in my HEATED hospital gown. So here is a list of things I brought, and things I wish I brought.
For you Caretaker or Friends/Family that accompany you:
-A blanket/pillow to sleep during your surgery (if they can), and overnight.
-Something to keep them entertained. Books/computer or IPad with movies/games/snacks. The last thing you need is for them to be nervous little worrywarts during the whole surgery!
-A packed dinner if they don't want to eat the hospital food.
For YOU:
-A blanket. (good for before AND after surgery)
-A really cozy change of clothes. they can unhook the IV (without taking the needle out and putting it back in) so you can change into something much comfier than a hospital gown.
-Slippers with grip on the bottom, in case you don't want to wear the hospital socks. Also some socks of your own are nice to have.
-I brought a white board and dry erase markers, but I really wish I would have thought of my doodle board then. it is not messy at all, and very easy to use and carry around. But all in all, bring something to help you communicate, be it a doodle board, white board, chalkboard, or pen and paper. You don't want to have people trying to interpret your moans and groans for 20 minutes when all you want is some water.
-I really enjoyed having my stuffed animal I got from a surgeon of mine when I was 5. When I was in recovery, I was crying and complaining that I couldn't breathe, (I was just being dramatic) and Dr. Piper brought me back my teddy bear! That's my only memory from recovery, and its a darn good one.
-I usually slept between hall walks, but when I was up, I wanted to play games with my parents and boyfriend. We didn't bring cards or anything like that, so we played hangman on my white board, but I really wish I would have brought a deck of cards!
-The hospital provides a sort of lip balm, but I really wish I would have brought my own, because theirs is very watery and clumps up when it dries. I have found after trying many different things, that EOS balms work the best for me.
-Bring the heating pad you picked up with your other prescriptions, and make sure to replace your ice when it all melts. The nurses were good about checking in, so we rarely had to leave the room for new ice.
-Bathroom essentials (deodorant, soft toothbrush, toothpaste) were very nice to have. I felt a little gross after being in the hospital overnight.
-Bring a free-standing mirror. You're going to want to look at yourself. A lot. Or at least I did. I got this Mary Kay pink travel mirror. It holds your hooks, rubber bands, a mirror, and your splint. It sells for $3 on amazon.
-The hospital will supply your nutritional drinks and water and syringes, tissues, an ice pack, and wash cloths.
MAKE SURE YOU DON'T EAT OR DRINK ANYTHING PAST MIDNIGHT THE NIGHT BEFORE YOUR SURGERY AND GOOD LUCCCKKKK!
Xx
So Far So Awesome!
Tuesday, August 19, 2014
First Day
Saturday, August 16, 2014
Back To School
Freak Out
So I got home, feeling like a shower. I talked to my brother in the living room for a few minutes, said hi to my dad in his room, got my towel from my room, and hopped in the shower. As soon as I got out of the shower, my timer to put my splint back in went off. But where was my splint? I don't know.
I searched all over the bathroom, all over the kitchen, my dads room, my room (even cleaned it all up) and all around my car. In the console, in the cup holders, under the seats, under the CAR. EVERYWHERE! My mom came home and helped me look all over the house, and double checked the car.
We started losing hope. We decided to call the piper clinic (which is apparently closed at 3pm on a Friday) And had to call it in as an emergency. So we left a very shameful message about my misplacement of my splint, and continued out desperate search. I was literally freaking out. I was so scared. I have been so good about keeping track of my splint, and then, I just lost it. literally.
I ran out to my car for one last sweep, and did the whole search routine again. About to turn around and go inside, something made me turn around and go around to the passenger side again. I pulled out my phone flashlight and checked under the seat, AGAIN. But then... there it was. The one thing i never thought that i would be SO happy to see.
I ran inside, washed it about 8 times, and my mom and I called back the "urgent" line at Piper Clinic, and left a second, even more shameful message explaining the false alarm. OOPS.
The oral of the story is.. KEEP YOUR SPLINT IN A CASE! Even if you think that you're just putting it down for a second.
AND SMILE
Xx
Monday, August 11, 2014
What's New? Not Much, What's New With You?
Monday, August 4, 2014
CAMP
I started ambassador camp today (show choir camp) which was so much fun, but my jaw was aching from start to finish (all 9 hours of camp total). I haven't been taking my klonopin very much at all, so it wasn't weird or off schedule that I skipped it this morning. I think I am going to take one each morning before camp this week, because things weren't feeling too great.
But tonight is one of "Those nights". The nights I have only occasionally this far into recovery, where I bring out the ice packs and the klonopin. My neck hurts, my jaw aches, my back is sore, my incision spots are in a lot of sharp pain, and i can't seem to fall asleep. Like always.
To top it all off I have some sort of head cold/sore throat type thing going on, which makes it EXTREMELY difficult to breathe with my splint in. I'm super stuffy and I keep having to stretch open my mouth and get a good breath in every few minutes or so. But it's all temporary and tolerable for now.
There's nothing ice packs and some good ole Elvis records can't fix.
Thursday, July 31, 2014
Tuesday, July 29, 2014
Friday, July 25, 2014
Birthday :)
Sunday, July 6, 2014
Dreaming
Sunday, June 29, 2014
Been a while.
Wednesday, June 18, 2014
Sunday, June 15, 2014
A little late but...
Friday, June 13, 2014
"Exercises"
well when i first tried in the office, i was at about a half, which wasn't abnormal, being that it was my first time out of the splint since surgery. well, you do it five times a day, and i kept going and finally got to a full one! I WAS SO PUMPED! so then i moved the stopper to level two, and I DID IT!!! (mind you, this is me yelling in excitement about where i am on my therabite, on the bathroom counter in the middle of my brothers grad party). since then i've been working on a level two, since i was on lots of meds, and i have only been able to force a full two, one more time since then. and i continue to keep going and trying and pushing myself to the next level.
well our phone consultation came up and they talked about all the basics, and discussed my meds and how i was feeling.. how i was eating.. was i coming out five times a day, etc. etc. etc.
then they mentioned my exercise schedule. "she's doing her jiggles, i assume she's on about a 3 or 4 on the therabite"
… well no, try a 2.
"other patients are usually around a 3 or 4 now, sometimes even a 5"
… no. i'm a 2. on a good day.
i couldn't take that. i burst into tears. i have been pushing myself before that phone call and i thought i was doing so good, and here i am, feeling so stupid because i was excited about being at a less-than-average point in my recovery.
i cried and cried, (im crying right now) and since the call i have been pushing and pushing. They suggested trying heat 15 minutes before i do my exercises, and that has done nothing. i work at it, i go as far as i can, and i just CAN NOT get myself past a two. i hit a full two this morning. i was going through my exercises and just got so frustrated and started crying and somehow i pushed myself to a full two, but there is no possible way i can top that. not right now.
well i felt really stupid, and i felt really bad, and felt lie I'm not doing good enough. well from the beginning i have been told not to compare my progress to other patients, so why shouldn't that apply now? i am working on level 2 on my therabite. i am pushing myself as hard as i can, and i am not giving up, but a 2 is where I'm at. it is all i can do. maybe thats a bad thing, but i can't let myself feel stupid and insecure and belittled by the fact that i can't open my mouth as far as the others who got surgery on the same day (which by the way is someone very supportive who has spoken to me about this already).
you recover at your own speed. i am cutting my meds in half, maybe even a little less. yes, i am feeling a little more pain, but i expected that by cutting my meds. i feel like i have swelled up a little since cutting meds and trying a little harder on my exercises, but thats all part of recovery. i feel like the medication was making me feel a little less like my happy giddy bouncy self. i blamed it on the fact that my face was just cut open for a while, BUT i feel like crying when someone looks at the camera the wrong way when I'm watching a film. so cutting meds may be what i need. i am already feeling (personality-wise) more like myself. still having rough patches. I'm still in pain. I'm still pretty upset about the therabite.
i did however just have some chocolate cake and ice cream, so i am feeling a bit better.
XX
Wednesday, June 11, 2014
Adventure Time!!!
- walked the streets of St. Pete, making new friends
- went thrift shopping with my mom and grandma
- painted a tree (and my boyfriend) and swam in the river
- been to the mall (several times)
- went to the beach with my mom, aunt, and grandma
- went to the movies
- went to the movies again
- went to my brother/boyfriends graduation
- went to my ambassador end-of-year party
- went to my ambassador start-of-next-year meeting
- a little bit of Netflix but whatcha gonna do ;)
Boyfriend appreciation post
From day one, he has been in the hospital with me, (before and after surgery) and at my house constantly. he was there when i took my splint out for the first time outside of piper's office and i just cried and cried. he was there when i did the same thing, and him and my mom drug me to public and make me get some food that i like (i was stubborn, of course).
he stays with me at night time until i fall asleep, and watches stupid movies with me because he knows it will make me happy. just a few pics i managed along the way. ( a few repeats, perhaps)
Saturday, June 7, 2014
Food
And started crying.
Mom and i took a breathe, looked at our options, and decided to run into public and grab 5 containers of mini micro Chef Boyardee berf ravioli and some beefaroni.
Food is stressful, but I will say, I could live off of those right now. They're small enough to swallow without chopping and smooth so they go down well. And tasty :)
Hope we make out movie
XX
Friday, June 6, 2014
Recognized
right after my appointment, my aunt and I went to eat at Cassis, a breakfast place, and I asked (enthusiastically through my splint) if he could mix pineapple and cranberry juice, and his response was
"Are you a doctor piper patient?"
Haha is so funny when people recognize that. Which, by the way, has only happened twice!
But now he's back there chopping my up some pancakes :) I love people!
New Friends
Today I'm feeling great! Cutting my pain pills in half, but keeping my muscle relaxers the same (since most of my pain is musclular) and I'm not feeling too bad.
I got a NEW splint today! The bite is slightly different, but I just replace the last splint with it.
I believe this is my last visit with piper until my 3 month :( I'm gonna miss the office and all the people I've met! I hope everyone keeps in touch, comments, asks questions, everything :) it's so fun talking with you guys!
Will post more about recovery and exercises later, just a quick post because I was talking about it at the office!
XX
Wednesday, June 4, 2014
scars and stitches
the first picture is with the drains, and with all the stitches, including the ones on my neck, covered. the next one was right after the drains came out and the bandages came off.
i will say, and excuse my language, but the stitches on my ears itch like HELL. its really hard not scratching them, but obviously, do-able. i keep them clean with a cotton swab and some peroxide.
getting the hang of things
Wow. It has been a rough week, but somehow i managed to make it through. so here's how it goes:
- you get your surgery
- you stay the night in the hospital to make sure you're fine
- when you're released, you see the chiropractor (which is actually my favorite part)
- eventually you'll get to take your splint out for fifteen minutes, five times a day
- you have to do two exercises
- you get to eat, but you can't chew (not even with your tongue)
- take your meds, and drink your fluids.
seems super easy right? well for some people, it may be a piece of cake, but not for everyone. when i go back to visit piper (almost every day a week post-op) there's another girl who had her surgery on the same day as me, so we're kind of on the same schedule. her surgery was the same, except she did not get her wisdom teeth out (which i am coming to realize makes a big difference in recovery).
Well, we were talking to her father about how she's doing (she's doing great) and he said she LOVES coming out of the splint. wow. now that surprised me. almost every single time i have come out of that splint, i have been in tears. its very strange because your range of motion is little to none, but it hurts me so bad, that i would rather stay in the splint forever. (just kidding, ha ha ha)
night 3, post-op is when things started getting a little crappy. the day was fine, i was great, i even went to the movies with my boyfriend (and fell asleep), and when i got home, i was a WRECK. i was in so much pay, and i was crying and it was bad. my boyfriend (who i need to say has been the best. super supportive, and super loving and caring and amazing) stayed with my for a while that night. him and my mom calmed me down, my boyfriend stayed for a while and let me fall asleep with him, and snuck out silently.
a MAJOR MAJOR part of this recovery, is having helpful and supportive people around, who can handle your medication schedule, and your pain and emotions, and keep you active (because unfortunately you can't sleep more than an hour each day). My mom and DJ have been those people. they've been with me since i entered the hospital, and i know i am a high-maintenance pain in the ass, but they work with me and are still so supportive, and understanding.
Today i woke up, in a little bit of pain, but i took out my splint, ate (swallowed) some oatmeal, brushed my teeth, flushed my wisdom teeth holes, took my meds, drank some fluids, did my exercises, put the splint back in, and I'm actually doing great. its my best morning so far, and I'm praying things are just going to get better from here.
SO. sorry for the really long post about everything and nothing. YOU READY FOR SOME MORE PICTURES? ill post some before and afters, and some fun videos in the next few. ENJOY <3